Monday, June 13, 2011

Day 12 - Major Presention and then to Northern Ireland

Presentation at Beaumont Hospital

I was invited to present to about 40 members of neurological faculty at Beaumont Hospital by Dr. Michael Farrell. Dr. Farrell is a neuropathologist who runs the Dublin Brain Bank out of Beaumont Hospital. It was a tremendous opportunity and a well-run morning chaired by Professor Tim Lynch. In the audience were the best experts of Ireland, including Professor Orla Hardiman, an international motor neuron disease expert, as well as Professor Jack Phillips, author of the Ireland national report on traumatic brain injury.

After my presentation, a team presented a case study of an Irish farmer who used to be a boxer and developed cognitive problems, paranoia, and motor issues beginning in his late 50’s. It was interesting – in the discussion of potential diagnoses, the doctors in the audience leaned on a probably diagnosis of Alzheimer’s disease. They interpreted the farmer’s cognitive test scores over time along with imaging of the brain as likely Alzheimer’s. To me, it illustrated the urgency for developing a clinical diagnostic test for CTE. The doctors couldn’t discuss CTE because they have no familiarity or training with CTE, so the discussed what they knew (which is of course what they should do in this teaching situation). Dr. Bob Stern will be launching a very interesting clinical research program soon, and I am hopeful we can eventually provide them with tools to discuss CTE this situation.

Next came the pathology report – I shouldn’t discuss the findings as they may be published, but there was obvious interest in this case being a possible case of CTEM. My new Irish generously offered to send slides to Dr. McKee for her review.

It was a great experience – Professor Phillips said – and I’m paraphrasing here because I’ve had too many concussions - “We’re hearing what is happening in the US and we’re on board.”

In the audience also was the top journalist on the issue of rugby and concussions for the Sunday Independent, who conducted a short interview and then was roped into driving Nicole to the train station for our 11 am to Belfast. Along the way I told him the difference Alan Schwarz of the New York Times made in advancing and accelerating concussion policy change in youth sports by committing the time to learn about the history and science of the issue. I hope this journalist takes a similar interest for Ireland, where just last week a top player in the Ireland League championship game was clearly concussed on the pitch. Instead of removing him from play, they stalled the game for a minute or two until he could balance again and then left him in. Two minutes later they asked him to perform a free kick (like a field goal in football), which is usually a simple maneuver for him. Guess what? Shanked in wide right, as he was suffering from the acute effects of brain injury… we have work to do here, but at least the positive was that no less than a dozen doctors, taxi drivers, and athletes mentioned their unease with it to me.

Trip to Belfast, Northern Ireland

Meeting Dr. Webb

The train to Belfast took us up the eastern coast of Ireland, and I understood why so many people visit the countryside. Too bad I didn’t have the time. More on Belfast tomorrow, but I was put to work immediately meeting with Dr. Michael Webb, one of a very small number of concussion experts treating elite athletes in Northern Ireland. We discussed the problems with rugby – in fact Dr. Webb gave a presentation to the Irish Rugby Board last year pushing hard and providing evidence for a 10 minute “brain bin” to evaluate players with suspected concussion. At the time, he said it went over like a lead balloon. I think he will be successful in the future.

Presentation and Dinner with Ireland Football Association Doctors

We were then picked up by Dr. Sarah Lindsey and her husband Dr. Andy Massey, who were essentially the other two doctors in Northern Ireland interested in concussions and working as team docs for pro sports teams. They asked me to put a presentation on at the Irish Football Association – where Dr. Massey is the top doc - and invited other doctors and people interested in the issue. There is an article about it here.

Sarah is the team doc for the minor pro hockey team in Belfast, the Giants, where she often pulls double duty for both teams. She said multiple times she has evaluated an opposing team’s player, diagnosed a concussion, and told the coach he can’t continue to play – only to see him back on the ice in a few minutes. She said the referees have been no help in these situations.

One of the docs who did join, however, was a world renowned expert in knee constructions. He gained that reputation by fixing so many of the ‘knee-capping’ shootings from the “Troubles” that existed in Northern Ireland through 1998. Shootings and bombings were so common that the two major hospitals for Northern Ireland – one for Catholics and one for Protestant – became top hospitals for trauma injuries simply due to experience.

It’s amazing to think of the old struggles. For those who are too young to have this taught in school, the Troubles was a 30 year campaign of terrorism between a group of primarily Irish and Catholic nationalists who wanted Ireland to be reunited under Irish rule, and primarily Protestant loyalists that wanted Northern Ireland to remain part of the United Kingdom. Over 3,000 people were killed since the Troubles began in the late 1960’s, and things are now recovering since the 1998 cease-fire. Andy’s father was a police officer when he grew up, and he said that the routine growing up was that to go to school, his father would look under the car for a bomb, then drive up and down the street just in case he missed it, and then return to let Andy and his sister in the car. Every day. They also informed me that the Europa, where I was originally staying, was famous for being the second most bombed hotel in the world, with 38 successful out of 67 attempts. Lucky break on the change. I’ll be taking a tour of Belfast tomorrow before heading back to Dublin.

Thursday, June 9, 2011

Day 11, Dublin Ireland - No Blood, No Foul

International Rugby Board

Less than two blocks from my hotel stands the International Rugby Board (IRB), which is responsible for stewarding a game popular on 6 continents. On short notice Dr. McCarthy set up a meeting with Sean Griffiths, head of technical services, who was kind enough to host me.

Mr. Griffiths is keenly aware of the concussion problem, and informed me IRB had just upgraded their concussion guidelines based on the Zurich guidelines, based on the firm principle that any athlete with a suspected concussion be removed from play for the game with no chance for return.

I could not agree more with that policy for athletes 18 and under or for programs without medical experts on the sideline, which Mr. Griffiths pointed out is 99.5% of the rugby population. So I am very proud of the IRB. However, after conversations with multiple experts during the week I found myself in the odd position of advocating for a looser return to play protocol, allowing for a 15 minute evaluation period as the NFL and NHL require in the states.

What I am almost certain will happen is that without a window to evaluate players to confirm that symptoms are definitely caused by brain trauma and not the wind being knocked out of a player, doctors will be scared to pull a player out with mild symptoms because they will have no chance to put them back in when they are wrong.

90% of concussions go undiagnosed in most sports. Some symptoms don’t come on until minutes or hours after the hit. For concussions with delayed symptoms and no chance to evaluate, we are also putting players in the difficult position of recognizing they have to pull themselves out while possessing a malfunctioning brain.

A problem with rugby is that it is a continuous game - there are no stoppages built into the game except for severe injury – and substitutions are restricted. In football we have the advantage of the players coming to the sideline every 5 or 10 minutes. In rugby, there is zero change to discuss a mild concussion. The only temporary substitutions allowed in rugby are for blood, where a player can come off, get cleaned up and covered, and come back in without penalizing the team.

I couldn’t believe it – the IRB made an exception to the rules for blood but not concussion? When I asked why a similar change cannot be made for concussion, Mr. Griffiths stated firmly, “Because it would be abused.” Substitution is such a strategic advantage in rugby that last year a player popped a blood capsule in his mouth to come off the field. It’s a great story – the opposing team doctor suspected a capsule, so after the game, he demanded to see the cut in the mouth of the player. Word is he didn’t have one, so the coach pressured the team doctor to take a scalpel and cut the mouth of the player! Which they did!!!! Once it was discovered, everyone involved was severely penalized, with I believe the coach suspended for a year or more.

Back to concussions - frankly I think the ‘abused’ concern is severely misplaced and premature. As in all rules, the challenge is in the execution. If a lifetime ban was the penalty for faking a concussion, I think it could be enforced.

Besides, if IRB is so concerned about abusing the substation rule, they should drop the blood rule too. A blood capsule? What is this, amateur hour? There are plenty of ways to draw real blood – just ask any pro wrestler. They won’t tell you – kayfabe, after all – but you will know that they know…

I believe the outcome of this policy is that pro rugby will be more dangerous, and I will work to fix it.

After a quick trip to Trinity College to see the Book of Kells and an amazing exhibit on the history of Irish medicine and Trinity medical school – including the skeleton of the Irish Giant – Nicole and I went to meet Dr. McCarthy and Professor Tim Lynch of the Ireland Neurological Institute. Dr. Lynch is a neurologist, an Irish Rugby Football Union team doctor, and a really smart guy who was up to speed on the nuances of the concussions debate in the states. He converted an old Georgian home across the street from Mater Hospital into his clinic, and it’s the nicest clinic you have ever seen. If I get another concussion, I want to be treated there – 15 foot ceilings, fireplaces, a baby grand piano in the waiting room – the works.

Dr. Lynch is also heavily involved in the Dublin Brain Bank, and recruits many patients for other neurological disorders. He even videotapes patients that are donors before they pass to allow or better clinical-pathological correlation. We discussed the possibility of recruiting athletes to the bank – fingers crossed we are able to move forward on this.

Nicole and I then made a quick stop to the Guinness Storehouse, naturally. Guinness has been brewed in Dublin for centuries, and then recently turned a brewery building into a museum. Impressive. To end the tour you have a drink at the Gravity Bar, which, amazingly, is the tallest building in Dublin and provides amazing 360 degree views of the city. I still can’t believe there are no skyscrapers in Dublin. (yes, that pic is at Guinness - it's like they knew I was coming)

I hustled back to the hotel for two quick meetings; first with Eamonn Sayers of the Sports Charitable Trust, a new charity designed to support athletes with catastrophic injuries. Eamonn was a very nice guy who lost someone close to him to a cervical spine injury, and had to raise the money to keep him alive. He now wants to help others who deal with similar problems.

Then Hamish Adams from IRUPA set me up with Sean Rowland, president of the Harvard Club of Ireland and owner of Hibernia College, an online university that is the largest producer of teachers in Ireland. A charismatic man, Sean trained at Boston College and the Kennedy School of Government at Harvard. He took a real interest in the CTE work, and I hope to keep in touch.

To end the day, Nicole and I had dinner at the home of Joyce O’Connor, a former Eisenhower Fellow and President Emeritus of the National College of Ireland, and her husband Pat. They had such great Irish warmth and Joyce provided great advice on how to best use this Fellowship to focus on long range personal and professional plans, and develop a strategy to get there.

Wednesday, June 8, 2011

Day 10 - Dublin, Ireland


Acquired Brain Injury Ireland

This morning I had the pleasure of meeting with Karen O’Boyle and Donnchadh Whelan of Acquired Brain Injury Ireland, which has a charter very similar to the Brain Injury Association of America, where I proudly serve on the board. ABII primary works to serve those with moderate to severe brain injury, but they hope to launch a sports concussion campaign this fall. Unfortunately I should not speak too much about their experience in trying to partner with various organizations for the campaign, other than to say it is familiar to my experience prior to 2010. Two former rugby players, Bernard Jackman and John Fogarty, have stepped forward to discuss their post-concussion symptoms a la Ted Johnson in 2007 in the US, and ABII is working with them and building momentum. I hope I can help them. We finished with a nice photo shoot by a professional photographer in the lovely courtyard of the Merriam - these guys are class acts - enjoy!

IRUPA

Next I went to the offices of the Irish Rugby Union Players Association in Dublin to meet with CEO Omar Hassanein, Hamish Adams, and Dr. Mick Molloy. Interestingly, Dr. Molloy was one of the authors of the Zurich guidelines and was the top medical consultant to the International Rugby Board until very recently. Details are sketchy but I think there is a difference of opinion on proper concussion protocols….

I presented our SLI and BU CSTE work to them and I was very well received. Omar said he spent part of the time realizing new concussions he’d had as a star playing in Australia. Hamish is also a former player out of New Zealand, and we discussed the challenges facing the game of rugby and opportunities to make the game safer. They were excited about the idea of educating their players and I hope we can work together to make that happen.

RTE Radio

We then headed to RTE studies to do a live half hour special radio broadcast on “Sports at Seven.” It was a follow up to an interview I did with them back in January. They had never before done a 30 minute program specifically on what has been considered a taboo subject, and they considered it very successful. I was joined by Donnchadh Whelan of ABII again and on the phone by Dr. Conor McCarthy, medical director of the Irish Rugby Football Union, a famous boxer who I unfortunately didn’t catch the name of, and another doctor with the same problem. The show went well – the information felt elementary, but I have to remind myself that we are starting back at the beginning in Ireland in many ways.

Dinner with Dr. McCarthy

To end the day we met with Dr. McCarthy, who I had just spoken to on the radio, for dinner at the Pearle Brassiere. The more I spoke with him, the more I understood why when his name is brought up everyone in Ireland says, “what a great guy.” He was even the doctor for a former Irish president. We had a great time discussing his experience training in the US and his thoughts on the concussion problem in rugby. One current discussion in rugby is the lack of a ‘brain bin’ – the ability for a doctor to pull a player off the field to assess them. More on that tomorrow…

Day 8 - Dublin, Ireland

Meeting with Jack Golden

Today in Dublin I met with Jack Golden, Group HR Director at CRH plc, which engages in the manufacture and distribution of building materials. Jack recently came on board as a trustee of Eisenhower Fellowships. It is easy to see why – EF is about developing leaders, and Jack is a former engineer who is now the head of HR for a company with 77,000 employees. We had a terrific discussion about how he identifies leaders (passion, capacity, skills, etc.) and how the he and the company look to provide them with the experiences needed to continue to grow. I don’t spend nearly enough time thinking about the type of processes he described, so it was very worthwhile.

That evening Nicole and I were picked up by Trinity College American Football Coach Danny O’Callaghan to go see a professional soccer game between the Shamrock Rovers F.C. and the Bohemian F.C., aka the Gypsies. Danny is a big fan of the Rovers and actually part owner of the team as the fans bought it a few years back after it went bankrupt. We’ve all heard stories about soccer hooligans, but I didn’t really know what I was getting into. Things are so bad between these two teams that the fans of the Bohemians are marched into the stadium by the police as a single group through a separate entrance to the arena on the opposite end of the stadium from the home fans.

The away fans entrance just happened to be by the door to the hotel bar where the Rovers fans pregame, so when we walked out 10 minutes to game time, I was hit by a surge of adrenaline when I saw two mobs of men yelling at each other and separated by about 40 cops with barking German Shepherds and mounted police that were actually using their horses to push fans around. We were about 5 seconds from a full riot as some kids hopped the first of two fences separating the group, but that was put to a quick halt by a group of what looked like SWAT teamers in all black that were aggressive with two hand shivers to the chests of the jumpers. The moment passed, and once we got in the stadium, I saw we were safe because the Bohemian fans were surrounded by a netting meant to snare anyone trying to make their way onto the field or out of their corner. Wild.

The game itself, which was almost a sideshow to the singing and chanting and wanker-calling, was a 1-0 stalemate that that Rovers won. I was treated to two head to head collisions on headers that left players on the ground rolling around in pain. The first popped up after 30 seconds and kept playing, and was never evaluated. The second was down longer, giving the team physio (athletic trainer) a chance to get on the field. He spoke to the player as he kept blinking and squinting his eyes – in my book, the universal sign for “I see two of everything.” My heart rose when he started walking to the sideline – are they going to assess him? Or just pull him out? Nope. He got to the sideline, had a 3 second exchange with the coach, and jogged back onto the field. We have some work to do here.

Day 9

Meeting the GPA

My first meeting of the day was with Dessie Farrell, the chief executive of the Gaelic Players Association. The GPA is a new organization and one if a very curious position – the Gaelic Athletic Association is an amateur organization by charter that controls the national sports of hurling and Gaelic football, yet they hold their championships is 80,000 seat Corke Park and players play into their 20’s and 30’s. The players are unpaid and receive no benefits, although employees in the GAA office receive handsome salaries, or so I read in an editorial in the paper. The only benefit the players get is unofficial but sophisticated job placement support.

The GPA fought for years for recognition to battle for simple things like health care for on-the-field injuries and career transitioning. Dessie is a former superstar for the Dublin team and well recognized around town. When I shared with him our work, he was blown away – he had heard bits and pieces of the CTE story, but never the full picture. He pledged his support to the cause and immediately got on the phone to get a hold of his medical advisors to discuss it.

Dr. Eanna Falvey

Dessie is also a heck of a guy and had his driver take me to my next meeting at the Santry Sports Clinic, a beautiful facility near the airport. I met with Dr. Eanna Falvey, the senior team doctor for the Ireland Rugby Team. Dr. Falvey is a former champion boxer, so you can imagine his interest in and awareness of CTE. We had a terrific discussion about his opinion of the state of the union. He asked my opinion on the proverbial ‘tough doctor call’ of a star player in a contract year in the 4th quarter of a big game who develops the mildest of concussion symptoms and wants to keep playing. What’s a doc to do, knowing pulling him out could cost the player and his family millions? (or in rugby, hundreds of thousands). I brought up the concept of informed consent – although I’m still considering this idea, perhaps in those rare situations the millions could be worth more than then brain cells…

I know it is sacrilegious to discuss that these days, but consider we let firefighters voluntarily run into burning buildings for much less money than athletes because they know the risk and take wise precautions to minimize risk. We know that mining and commercial fishing are dangerous, but we let people do those jobs too.

The key with concussions, however is that you’d have to ask the player BEFORE they are concussed, as we know they have a malfunctioning brain while concussed and cannot give consent then. And on the other side, we could not let every player sign a waiver to ask to play through concussion, as that would create a game where athletes would be pressured by management and competition for jobs to sign the waiver, and we’d be back to square one where no one could report a concussion.

Could you imagine a future with a “Big Game” concussion waiver? “Welcome to Super Bowl LXX! Tonight both teams’ starting quarterback have signed their concussion waiver! Last man standing wins!!!!” Hmmmm, maybe it’s not a great policy on paper. I’ll tell you this – I’m glad I’m not a team doctor, as this stuff is not always black and white.

Advanced Concussion Training with Trinity College American Football Coaches

Finally, I ended the day presenting to Danny O’Callaghan and the coaches of the Trinity College American Football team. They secured a classroom and I went through the full SLI Advanced Concussion Training that Dr. Cantu and I put together. They were blown away and very appreciative. Head coach Darrin O’Toole is the technical director of the Irish American Football Coaches Association and plays a big role in the international American football coaching world, and I am hopeful good things will come of this newfound friendship. Following the meeting we explored the pubs of Dublin looking for the best pint of Guinness. Note to self – end every meeting that way.

Monday, June 6, 2011

Days 6 and 7

Day 6

Flemish National Theater

Jan Goossens was an Eisenhower Fellow in 2009, and is the director of the Flemish National Theater in Brussels. He invited me to see a performance of Desdemona, written by Toni Morrison and directed by Peter Sellers, Harvard ’81. There were many VIPs in the audience, and I found myself seated next to the mayor of Brussels (or course). Jan introduced me to Peter Sellers after the performance and it was one of those strange moments – I told him about my work and purpose for being in Belgium, and he said, “I know of your work! I’ve spent the last year immersed in your world. I am putting on a play next month on the untold stories of the troops with brain trauma and PTSD set to the music of Handel. Your blowing my mind – what are you doing in Old Europe at the Flemish National Theater at my play?” We’re going to keep in touch as he said he was lacking visuals that tell the story of brain damage and disease. Unfortunately we have plenty of that.

Day 7

Today I landed for the first time in on the Emerald Isle of Ireland. The initial highlight of my trip was that I was joined by my girlfriend Nicole, who is going to help me navigate a country full of devoted contact sportsmen. Ireland has been most welcoming to me – I have done radio on RTE Sports and with legendary rugby player George Hook, and helmets were just made mandatory in Hurling, so I’m expecting a good discussion this week.

Trinity College Football Game

One of the people who heard me on Irish radio was Trinity College American Football coach Danny O’Callaghan, who sent me a random email of support with the usual “if you’re even in Ireland.” 4 months later, he picked me and Nicole up from the Merrion Hotel (where President Obama stayed on his trip, that’s how I roll) and drove us out to the Trinity College practice grounds to watch his team play. Yes, I said practice grounds, that’s not a type. Trinity College, just barely older than Harvard with a 1595 founding date, is a Dublin university with only one small grass sports field, and they only allow rugby to be played on it. This whole country is backwards…

American football is interesting in Ireland. There is no high school football here, so nearly all the players had just learned the game, and some I were told were competing in their first real game. I was also invited to participate – eligibility is different here, and apparently I don’t need to be enrolled in the college to play. I have to admit I was intrigued – one more chance to run around and hit people, for old times. Obviously, I declined. Too many miles on this brain already.The game was interesting, to say the least, and although the quality was not what we are used to in the states, certainly the enthusiasm was there.

I did check off one item on my list during the game - I saw a real live Irish concussion. I was worried if I’d see on – there is so little dialogue here on the issue, I figured my chances were just about as good as seeing a leprechaun (fingers still crossed!)

Number 91 was clipped under the chin and was down on the field for a good 3 minutes. With this enlightened football staff, it was not even considered waiting to see if he ‘cleared up’ to go back in. At the end of the game, which Trinity lost, the coaches asked me to address the team, and then they were kind enough to talk take a picture with me.

That evening back at the hotel I caught highlights from a Gaelic Football match. I am now a Gaelic Football enthusiast. If you haven’t seen it, which I’m guessing most haven’t, it is the greatest game ever created, a combination of soccer, rugby, and basketball. I’m hooked.

Sunday, June 5, 2011

Days 3-5


Meeting with ERC

This morning I met other program officers from the European Research Council – Dr. Vaida Bankauskaite (Lithuania) and Dr. Sally Donaldson (UK), who are with the Advanced Grants Dept. We had a great discussion of science and politics, and they provided a list of current grantees, some of whom I hope to meet along my travels.

Lunch with Gauthier

Eisenhower Fellows has an incredible network of Alumni around the world. The Fellowship is such a life-changing experience that most alumni open their doors and rolodexes to new Fellows, and I have certainly benefitted. Dr. Gauthier Desuter was a fellow in 2009. He is a physician now serving as the Chairman of the Quality Council at Academic Hospital Saint-Luc, UCL in Brussels. Gauthier took me to lunch at Fondation Universitaire, a faculty club shared by a few universities. It smelled of leather bound books and rich mahogany. Gauthier was just named as a medical advisor to the Belgian National Rugby Federation, where he said concussions are starting to be discussed.

Meeting with Professor Paul Wylleman

My next stop was to meet Professor Paul Wylleman, the President of the European Federation of Sports Psychology, at Vrije University. A man with an easy smile, he works on career development of young elite athletes. It was a good discussion and a good end to the day.

Day 4

My Thursday was light, but the important meeting I did have was with Ireland Member of the European Parliament (MEP) Sean Kelly. As former president of the Gaelic Athletic Association and Exec Chairman of the Irish Institute of Sport, he holds a lot of sway in the Irish sport world. Kelly’s staffer Kevin Keary joined us. As we walked to the coffee shop MEP Kelly discussed how important President Obama’s visit was to Ireland and Irish-American relations. We reviewed the research out of BU and SLI and he bought in immediately, and was very focused on the youth issue. Kevin followed up with some contacts that will help the Ireland trip, and also mentioned he may be able to help me sit down with staffers in the office of Mr. Santiago Fisas Ayxela, an MEP from Spain who is on the Committee on Culture and Education of the European Parliament and is the member rapporteur on Sport – in English, he is writing the European Union report on Sport, set to be out in July.

Day 5

Kevin Keary came through and I grabbed coffee with Gabi Hernandez, a former professional water polo player who is now working on the report with Santiago Fisas Ayxela. He assured me that concussions were not involved in the EU Sports report, and it is far too late to get them in. However, as a veteran of a significant car accident, he was interested and provided some top secret advice to advance change. I then had a wonderful lunch with Valere Moutarlier, a member of the cabinet of Algirdas Semeta and the department of Taxation and Customs Union, Audit and Anti-Fraud, where he shared some great tips for making the Fellowship a success.


I then hopped a train to Ghent to do some sight-seeing courtesy of former Eisenhower Fellow Michael Voordecker’s and his wife Katrien Van Hoecke. Michael was a fellow last year and works for Hill & Knowlton while serving on as the board chair of multiple retirement communities. His wife Katrien is a public prosecutor. Mike was working late, so Katrien picked me up to take me on a boat tour of Ghent’s canals. Ghent is an amazing place – it was the second largest city in Europe, after Paris, through the 13th century, and its medieval heritage has been well preserved. My favorite part of the boat tour, however, was Katrien pointing various buildings and sharing the criminal backstories of current and former owners. Michael and Katrien were amazing hosts that shared with me the history, and types, of many local Belgian beers…